Comments for AUTISM-A2Z http://autisma2z.wordpress.com Autism and Other Learning Disabilities - From A to Z Mon, 26 Jan 2009 16:35:04 +0000 http://wordpress.com/ hourly 1 Comment on Where to Begin by AA2Z http://autisma2z.wordpress.com/2008/08/07/where-to-begin/#comment-22 AA2Z Mon, 26 Jan 2009 16:35:04 +0000 http://autisma2z.wordpress.com/?p=17#comment-22 Dear Kim, Thank you so very much for finding me and getting me back into my website. I have been off line for a long time and needed a boost to get back to my first love,working with children and parents with autism. I completely agree with you and congratulations for hanging on in there and fighting for your little one. I was always surprised when I heard doctors tell parents to 'wait a while, he is young. boys develop later than girls.' etc. After all, who knows the child best? I say, keep going from one professional to another until you find one who will listen and then design a program that meets the needs of the child. As we know, one size does not fit all in autism and each child deserves exactly what he/she needs. We cannot afford to waste their time, early intervention it too critical. This applies to the medical and the educational fields. Schools must meet the needs of each child, not always easy, but always necessary. Dear Kim, Thank you so very much for finding me and getting me back into my website. I have been off line for a long time and needed a boost to get back to my first love,working with children and parents with autism.
I completely agree with you and congratulations for hanging on in there and fighting for your little one. I was always surprised when I heard doctors tell parents to ‘wait a while, he is young. boys develop later than girls.’ etc. After all, who knows the child best? I say, keep going from one professional to another until you find one who will listen and then design a program that meets the needs of the child. As we know, one size does not fit all in autism and each child deserves exactly what he/she needs. We cannot afford to waste their time, early intervention it too critical. This applies to the medical and the educational fields. Schools must meet the needs of each child, not always easy, but always necessary.

]]> Comment on Where to Begin by Kim http://autisma2z.wordpress.com/2008/08/07/where-to-begin/#comment-21 Kim Mon, 26 Jan 2009 15:06:28 +0000 http://autisma2z.wordpress.com/?p=17#comment-21 I'd have to say that you should tell parents to follow their gut instincts. If they think there is something that's just "Not right" with their child, then they should push it until they get their answer. That's what I had to do with my Ryan. I’d have to say that you should tell parents to follow their gut instincts. If they think there is something that’s just “Not right” with their child, then they should push it until they get their answer. That’s what I had to do with my Ryan.

]]> Comment on Where to Begin by AA2Z http://autisma2z.wordpress.com/2008/08/07/where-to-begin/#comment-20 AA2Z Mon, 08 Sep 2008 01:27:55 +0000 http://autisma2z.wordpress.com/?p=17#comment-20 I think you are so right. Being able to sit down and talk with someone who has a little experience makes it easier to get your head together and at least know there is help out there. Most areas have parent groups that can be very helpful. I t's nice to listen to how others handle different situations and learn of the services, people, activities, etc. available in the area. I find it very helpful to search for courses in the area, through local agencies or colleges that are available for parents and teachers. Are you familiar with CARD? I think you are so right. Being able to sit down and talk with someone who has a little experience makes it easier to get your head together and at least know there is help out there. Most areas have parent groups that can be very helpful. I t’s nice to listen to how others handle different situations and learn of the services, people, activities, etc. available in the area. I find it very helpful to search for courses in the area, through local agencies or colleges that are available for parents and teachers. Are you familiar with CARD?

]]> Comment on Initial Diagnosis by AA2Z http://autisma2z.wordpress.com/2008/08/05/initial-diagnosis/#comment-19 AA2Z Mon, 08 Sep 2008 01:04:18 +0000 http://autisma2z.wordpress.com/?p=10#comment-19 So true, it is amazing how the states/counties differ in the services offered to our special children. And yet everyone agrees the earlier we get them in a program, the more sucess we have. In my program, we could pick up the children at age 5. My constant concern, as we began working with them was, where were they at age 3. In so many cases, I felt as if we wasted all that time when we could have been making progress, instead of playing catch up. So true, it is amazing how the states/counties differ in the services offered to our special children. And yet everyone agrees the earlier we get them in a program, the more sucess we have. In my program, we could pick up the children at age 5. My constant concern, as we began working with them was, where were they at age 3. In so many cases, I felt as if we wasted all that time when we could have been making progress, instead of playing catch up.

]]> Comment on Initial Diagnosis by Bethany http://autisma2z.wordpress.com/2008/08/05/initial-diagnosis/#comment-18 Bethany Thu, 04 Sep 2008 22:01:17 +0000 http://autisma2z.wordpress.com/?p=10#comment-18 I was lucky enough to live in an area with a fantastic birth to 3 program, and both my boys qualified for the Early Childhood Special Ed Program after they aged out of B to 3. But there is little available in this area for those who don't qualify for ECSE. I was lucky enough to live in an area with a fantastic birth to 3 program, and both my boys qualified for the Early Childhood Special Ed Program after they aged out of B to 3. But there is little available in this area for those who don’t qualify for ECSE.

]]> Comment on Where to Begin by Bethany http://autisma2z.wordpress.com/2008/08/07/where-to-begin/#comment-17 Bethany Thu, 04 Sep 2008 21:59:11 +0000 http://autisma2z.wordpress.com/?p=17#comment-17 I was 20 when I had my first son. He was originally evaluated for ASD but ended up with a FX diagnoses. The ASD dx didn't come until he turned 5, though I think it could have been much earlier. WHEn he first received his dx I was lost, I didn't know where to turn. Getting all the medical questions answered was easy , but finding out what it was like raising a FX and ASD child was hard. I think that answering the parenting questions is often more important than all the medical mumbo jumbo that is thrown at you. I was 20 when I had my first son. He was originally evaluated for ASD but ended up with a FX diagnoses. The ASD dx didn’t come until he turned 5, though I think it could have been much earlier. WHEn he first received his dx I was lost, I didn’t know where to turn. Getting all the medical questions answered was easy , but finding out what it was like raising a FX and ASD child was hard. I think that answering the parenting questions is often more important than all the medical mumbo jumbo that is thrown at you.

]]> Comment on Welcome to AUTISM-A2Z by AA2Z http://autisma2z.wordpress.com/2008/08/05/hello-world/#comment-16 AA2Z Mon, 25 Aug 2008 18:39:10 +0000 #comment-16 This has to be one of our most difficult questions. For many years there has been a common belief that the shots have a connection to autism. It is a logical conclusion since the timing of the shots coincides with the onset of autism. Additionally, since there is such an increase in cases, the cause/causes must be common to many children. However, reseach continues to point away from a vax/autism link, although there will continue to be research. The good news is our extensive media coverage. When I first entered the field of autism, and told people I was teaching autistic autism, they would ask if the children painted well. Regarding the shots, we must continue to question doctors, research the shots and decide which ones are truly needed. Change comment box size: + | – (blockquote and a tags work here.) 4 Responses to “Where to Begin” Comments RSS Feed Great question! Doctors need to start having material handy for parents when they give out the diagnosis. I remember the first time a doctor suggested my son may have some form of autism/pdd. I didn’t even know what pdd was, and autism? Heck no way. I had to do research on the net, and scramble to find books that I thought applied. When he was then dx’d by another doctor about 6 weeks later, I was again sent home with no documentation about autism, though this time I had a referral to the Regional Center (California) and the local school district. When someone’s given a dx of cancer, arthritis, bronchitis, whatever, the doctors can give them resources, information, documentation, etc. But with autism, not enough is known, and many doctors are unprepared. So, going back to my son’s dx, I’d have most preferred some comforting help along with the dx. Both our initial doctors did say “Your son is smart, he’ll have a good life, he can still go to college…” which I’ve heard is more than many parents hear from a doctor, but so much more is necessary. (And great blog!) acollage This has to be one of our most difficult questions. For many years there has been a common belief that the shots have a connection to autism. It is a logical conclusion since the timing of the shots coincides with the onset of autism. Additionally, since there is such an increase in cases, the cause/causes must be common to many children.
However, reseach continues to point away from a vax/autism link, although there will continue to be research. The good news is our extensive media coverage. When I first entered the field of autism, and told people I was teaching autistic autism, they would ask if the children painted well.
Regarding the shots, we must continue to question doctors, research the shots and decide which ones are truly needed.
Change comment box size: + | –
(blockquote and a tags work here.)

4 Responses to “Where to Begin”
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Great question! Doctors need to start having material handy for parents when they give out the diagnosis. I remember the first time a doctor suggested my son may have some form of autism/pdd. I didn’t even know what pdd was, and autism? Heck no way. I had to do research on the net, and scramble to find books that I thought applied. When he was then dx’d by another doctor about 6 weeks later, I was again sent home with no documentation about autism, though this time I had a referral to the Regional Center (California) and the local school district. When someone’s given a dx of cancer, arthritis, bronchitis, whatever, the doctors can give them resources, information, documentation, etc. But with autism, not enough is known, and many doctors are unprepared. So, going back to my son’s dx, I’d have most preferred some comforting help along with the dx. Both our initial doctors did say “Your son is smart, he’ll have a good life, he can still go to college…” which I’ve heard is more than many parents hear from a doctor, but so much more is necessary. (And great blog!)
acollage

]]> Comment on Welcome to AUTISM-A2Z by AA2Z http://autisma2z.wordpress.com/2008/08/05/hello-world/#comment-15 AA2Z Sat, 23 Aug 2008 13:34:47 +0000 #comment-15 Well, a million thanks to FXSmom for the encouragement and especially the very wise comment about the first two weeks being the toughest. I certainly have majored in that. I am in week three and cannot get this blog thing to work. Obviously, autism is my field and not blogging. I have written two wonderful comment and have lost them both. Trust me, they were really great, you know, when you rework all the sentences so that they read beautifully. Well, somewhere out in the blogosphere never to be seen or heard... So, I am going to try again, hoping that I have another two weeks. I guess there is no need to tell you that I am a slow learner, but I will beat this thing. I have been on the beach watching everyone else read the latest James Patterson novel while I was pouring through my collection of articles, papers and books in order to be the best blog ever. Do you know how much stuff you can collect in 18 years of teaching our wonderful little ones with autism? By the way, have you noticed that our kids the most beautuful kids ever? THIS IS A TEST! If it get out of this litle black box on my lap we are IN! Here goes! Let me know. Well, a million thanks to FXSmom for the encouragement and especially the very wise comment about the first two weeks being the toughest. I certainly have majored in that. I am in week three and cannot get this blog thing to work. Obviously, autism is my field and not blogging. I have written two wonderful comment and have lost them both. Trust me, they were really great, you know, when you rework all the sentences so that they read beautifully. Well, somewhere out in the blogosphere never to be seen or heard…
So, I am going to try again, hoping that I have another two weeks. I guess there is no need to tell you that I am a slow learner, but I will beat this thing.
I have been on the beach watching everyone else read the latest James Patterson novel while I was pouring through my collection of articles, papers and books in order to be the best blog ever. Do you know how much stuff you can collect in 18 years of teaching our wonderful little ones with autism? By the way, have you noticed that our kids the most beautuful kids ever?
THIS IS A TEST! If it get out of this litle black box on my lap we are IN! Here goes! Let me know.

]]> Comment on Where to Begin by Coco Davis http://autisma2z.wordpress.com/2008/08/07/where-to-begin/#comment-14 Coco Davis Fri, 15 Aug 2008 16:19:59 +0000 http://autisma2z.wordpress.com/?p=17#comment-14 What is the latest information about autism and vaccinations? My 1 year old is due for his shots and I'm nervous. What is the latest information about autism and vaccinations? My 1 year old is due for his shots and I’m nervous.

]]> Comment on Welcome to AUTISM-A2Z by AA2Z http://autisma2z.wordpress.com/2008/08/05/hello-world/#comment-10 AA2Z Tue, 12 Aug 2008 15:02:35 +0000 #comment-10 I have received some questions regarding getting ready ro send my child to school. We must have a plan in place, before school starts. Time is running out, meet with the school officials and become the teachers' best friend. Let's make a list of suggestions. I know we have many ways to help the teacher/student get off to a good start. Ideas?? I have received some questions regarding getting ready ro send my child to school. We must have a plan in place, before school starts. Time is running out, meet with the school officials and become the teachers’ best friend. Let’s make a list of suggestions. I know we have many ways to help the teacher/student get off to a good start. Ideas??

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